Autism is a
not disease but rather a disorder that stays with a person throughout their
lifetime. It influences social and cognitive behaviour, communication and the
learning process. Moreover, autism affects the five senses. Ideally, children
should get diagnosed before the age of six, which is when the brain fully
develops.
Debbie
Kolokythias's son Lucas had many issues from birth, but it was when he was
three that she noticed that he had social problems. When Lucas was five,
Kolokythias took him to get diagnosed, and she learned that he was suffering
from autism coupled with ADHD.
Autism is
more common than you might think. One in 68 children is touched, a diagnosis
that has increased tenfold in the past 40 years. Boys are the most afflicted,
with 1 in 42 boys compared to 1 in 189 girls getting diagnosed.
At now
eight years old, Lucas has an attendant to help him in class at his school, Our
Lady of Peace Elementary School in Laval. One of those attendants for special
needs working at the school is Lynn Martin, who led a school-wide initiative at
the school in spring 2015 to raise awareness about autism. It was after seeing
an advertisement about Autism Speaks Canada in the media that she decided to
get involved. She says that while there are many autistic children at the
school, most children didn't understand what autism was. Autism can show up in
different forms because some autistic children are highly functioning while
others can't speak.
Martin got
Krista Leitham, Regional Walk Manager for Autism Speaks Canada, to come speak
at the school. Autism Speaks Canada is the sister organization of Autism Speaks
in the United States, but funds raised in Canada remain in Canada.
Every June
since 2005, the national non-profit organization prepares walks across the
country to raise funds for autism research and community programs. Since 2010,
there has been $317,000 handed to 14 community organizations in Montreal who
applied for grants through Autism Speaks Canada. The annual walk is an occasion
for families to get together and to raise awareness for a good cause.
Kolokythias
first got involved in the walk when she donated to a friend whose daughter is
autistic. When Lucas was diagnosed, it became clear to her that she must do the
same thing for her son. Ever since, she leads the team Lukey Luke, whose name
is based on Lucas' childhood nickname.
As part of
her initiative, Martin got inspired by Kolokythias to create a school team for
Our Lady of Peace. Both women raise funds for the walk through social media and
email, which Martin says is much easier than in the past. Kolokythias is
thinking about furthering her efforts by selling bracelets and baked goods.
As for the
walk itself, Kolokythias creates capes for the whole family, which Lucas loves
wearing. He also enjoys the activities, especially the dog therapy courtesy of
Asista Foundation and the soccer facilitated by the Lakeshore Soccer Club. He
also appreciates the free toys, courtesy of sponsors such as Toys ''R'' Us.
While the
day is fun for the children, it also brings comfort to the parents. ''It helps
me to cope,'' Kolokythias says about her family's participation in the walk.
''It's difficult to have a child with autism. It makes me feel that I'm doing
something, spreading awareness and talking to people about it,'' she says. As
for Martin, she says that her fondest memory of the walk was seeing everyone
come together on a beautiful Sunday morning for the cause, including her own children.
The
Montreal Walk now has 1,250 participants and growing. This year, it will happen
on Sunday, June 5th at McGill University. There will be a walk,
exhibitors (therapies, products, and leisure programs), adapted sports and a
calming area. People who want to participate are encouraged to register their
team on the website of Autism Speaks Canada.
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