"The kids who need love
the most will always ask for it in the most unloving ways." 1
My
second son, Cedric, was a strong-willed baby, then toddler. Prone to getting
frustrated by things that seemed trivial, he had no difficulty expressing his
dislike of anything. He would have tantrums and cry until he passed out; a
condition known as the Sobbing Syndrome. When I discussed this with his
pediatrician, he warned me that it suggested an easily angered and rigid
temperament in my son. Little did we know the many ways that statement would be
true.
The red flags started to go up
around the age of two; he would bite others and have major tantrums. I was
shocked by this child who behaved so differently from his older brother; on the
other hand, he was so bright! He spoke in full sentences at 18 months and could
figure out puzzles that were well above his age level. By the age of four, he
was throwing chairs at adults and hurting whoever was too close to him at different
moments. He would punch me and pull my hair. That is when I called the CLSC and
told them that I had concerns. They sent a psycho-educator to our home and we
began working on parenting strategies to help our 'demanding' child. He began
seeing an occupational therapist. Neither the psycho-educator nor the O.T.
mentioned Autism Spectrum Disorders. His
behaviour in Kindergarten was so unpredictable and violent that we were
re-directed towards a child psychiatrist at the Centre de santé et services sociaux de Laval (CSSSL). All anyone in
the outside world could see of my baby was that he was angry and violent. In all, it took four years for them to be able
to diagnose our son with Asperger's Syndrome. Once I heard the diagnosis, I
felt a sense of relief. Now I knew the culprit's name that was causing my child
to be alienated from others. Knowing the syndrome’s name gave me the power to
find resources, help, and support.
In the two years since the
diagnosis, I have often thought about what it means to parent the ASD child. In
my case, I speak of parenting the child with Asperger's, since all children on
the spectrum are different, unique and have their own distinct traits.
Asperger's Syndrome is a form of autism that is characterized by having difficulty
reading non-verbal signals in others that we take for granted. The main challenges come from social
communication, social interaction and social imagination. Interacting with
others can cause high levels of anxiety and confusion. People with Asperger's
Syndrome also have average or above-average intelligence.
Parenting Cedric is a gift that
keeps on giving, both positively and in challenging ways. It is arduous yet tremendously rewarding. It
is a family affair, as all members are transformed by the presence of this
child. Our struggle has been to learn about the invisible disability that
affects our son. He is a brilliant, funny, creative, passionate, and endearing
child who sees things through lenses that are blurry for us. Yet, we have
learned that his way is not the wrong
way, it is just different. We have had to learn to open our minds and ears, attempting
to see and hear what he sees and feels. What we thought of as odd became genius
and creative, just another way of viewing the world.
I feel privileged to have been
chosen as Cedric's mom. I am constantly learning about him, myself and living in
a social world. I am regularly forced to re-define my ideals, views and
beliefs. I feel an unparalleled sense of purpose to find acceptance and
understanding for children who live with this disability. I have a deep desire
for him to succeed in the social relationships that he initiates. I battle to contain my ugly emotions of anger
and frustration when he loses control. I know that the anxiety that fills him
daily is a burdensome cross to bear, so I cannot hold his meltdowns against
him. I have had to become a prevention expert; what can go wrong and how can I
avoid it? The skills that have developed
in parenting my son have been unexpected blessings, signs that hardships do
create strength.
1www.myaspergerschild.com/2010/09/parenting-tips-for-parents-with.html
About the
Author;
Audrey Kannon is mother
of three; a 17-year-old, a 10-year-old ASD child and a 5-year-old. She is a
Kindergarten teacher with the SWLSB and has a passion for working with children
with Special Needs.
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